blog.circusgeek

a personal blog with nerdy bits thrown in

  • Update 5 – Still not home

    The day after my last update, Max had his feeding tube re-inserted because he wasn’t eating enough. He needs to be able to take down a certain volume per day and was far away from that goal. Bit of a bummer but understandable.

    Then he was diagnosed with thrush (warning: icky pics), which may help explain why he hasn’t been eating well. He’s been treated for that and it’s virtually gone now.

    A couple days ago they removed the last of his IV’s (which was being used to both administer medication as well as provide nutrients). This was great news since it means that even though he may need to be fed via a tube in his nose, he’s getting all his sustenance through his mom’s milk now.

    Yesterday they again removed the feeding tube to try to see if he would eat better. The hope was that rather than constantly filling Max’s tummy with 70 ml of milk every 3 hours on the dot, if they let him get hungry on his own and eat on his own he might eat enough via bottle. He eats a bit, but still not enough and it’s a lot of work (he’d wake up, eagerly feed for a minute or two, swallow some air, get fussy, burp, feed a bit more and then doze off and lose all interest in eating). His nurse called him stubborn. I have no idea where he got that from. Nope. No siree.

    So while he’s eating a great deal more than he was (between 20 and 50 ml per feeding) it’s not enough, nor is it consistent between feedings. The result is that he’s lost a little bit of weight with the tube out, so it’s going back in and will be used to offset whatever he doesn’t eat on his own, to make sure he keeps his strength up and doesn’t get dehydrated.

    The good news is that he’s recovering very well from his surgery, his respiration rate has dropped to more normal levels, he’s starting to eat like he should, and he looks awesome.

    He’s just not home quite yet, and until he eats right, he won’t be. Hoping it’ll all click and he’ll start eating like a hungry baby should any day, but being realistic it could still take another week or more.

  • Update 4 – Max on the mend

    It’s been 3 days since the surgery, and Max is doing really well.

    Yesterday he had the breathing tube and the stomach suction tube removed from his mouth/throat, and also had two of his four IV’s removed. We went to hang out with him twice yesterday (New Years Eve), the first time he was still pretty well sedated, but the second time in the evening he was awake and Kelly was able to hold him for a little bit. It was so nice to see his eyes again for the first time since the night before the surgery. One thing they added between the two visits was a feeding tube (run through his nose) since they were pretty sure they’d be introducing food (his momma’s milk) into his empty tummy soon.

    Today was even better. Not only did they feed him, but they did it via a bottle and removed the tube in his nose! He ate a few times today and has been keeping it down. This is very good news; it’s normal for any baby to have some reflux issues, but it’s typically worse for infants who’ve undergone surgery like Max has. He’s taking small portions (5 milliliters  every three hours), and they are going to try to up the portion size overnight and into tomorrow.

    While naturally we’re elated, we must also remain a bit cautious since he needs to be able to eat well consistently, gain some healthy weight (while at the same time losing some of his puffy/swollen weight from the surgery, IV’s, etc), and they need to watch his intestines carefully. The surgery basically pushed his intestines down into place, and they will hopefully stay in the right/correct position while he digests his food. He’s also pass this food out the other end to ensure everything is operating as it should. This will hopefully be a quick process, but this is what might take weeks before they’ll let him come home with us.

    All in all however, he’s recovering quicker than we’d been prepared for. They weren’t expecting to remove the tubes, be reducing his morphine dosages, and feeding him until tomorrow or Monday at the earliest. It’s only a couple days early, but it’s making us feel so much better.

    Today we both spent an hour holding the little man. He was awake and squirmy the whole time, but not fussy and just looking around and waving his arms all over the place. Such a huge improvement, and such a big relief.

    For those who want to know what he looked like on Thursday afternoon (and you’re not squeamish) take a look at Mighty Max with his tubes and battle scars.

    Thanks yet again for all your support and kind words over the past week. It has been and continues to be a huge help for Kelly and I.

    Oh yeah, and Happy New Year!

  • Update 3 – Surgery completed

    As of 1pm today, Max has successfully come out of his surgery and is now in a more intensive recovery area of the NICU. His surgery to repair the hernia did involve a mesh prosthetic, but that was placed in only after the surgeon realized that simply pulling together and stitching the empty spot of his diaphragm wasn’t going to work (pulled too tight, risk of splitting open again). The mesh that was placed in will (providing a good recovery) be surrounded by tissue over time and become a part of him that he’ll never have to worry about again.

    Right now he’s on a paralytic to keep him still and morphine for the pain. He also has no less than 7 tubes or needles stuck into him, including one for the breathing machine. He’ll be gradually weaned from the morphine and the respirator over the next few days, and will (with any luck) be mostly recovered from the surgery by Saturday or Sunday.

    Then the 2nd phase of recovery begins: getting his innards to work like they should. When you have surgery, your intestines are one of the organs that your body shuts down to conserve strength for critical functions (brain, lungs, heart). This can take some time to get back to working order, so hopefully starting next Monday he’ll be in a place where he’ll be ready to start putting mom’s food into his poor empty tummy, and then they watch carefully to make sure everything is working as it should. This process can take anywhere from a few days to a few weeks. So, we’re not sure when he’ll be coming home with us yet, at least the worst part of this ordeal is over.

    The updates will likely slow down a bit from this point. I’ll let you all know when he’s mostly recovered from his surgery, and again when we know more about his ETA for home.

    Thanks everyone for your support. It’s been extremely helpful through the last few days.

  • Update 2 – surgery tomorrow

    Today has been one giant roller-coaster.

    Yesterday there were some ultrasounds taken of both the chest and heart which seemed to indicate a diaphragmatic hernia and that he would indeed need surgery by the end of this week. However, the radiologist wanted to do another set of scans to be sure, which he did this morning. The results of these second scans led the doctors to think that there was a good chance that surgery may not be needed (that it might be an eventration rather than a hernia of the diaphragm), however the surgeon would need to make the final diagnosis.

    Naturally we were both elated. And then we got a visit from the surgeon.

    Apparently whether an eventration or a hernia, it causes the same problems: intestines pushing against Max’s left lung and causing breathing difficulties. Not only did we find out that we will be having surgery, and were told all the possible risks and complications (which terrified me quite a bit), but that he goes into surgery tomorrow morning at 7:30am.

    The surgery will last between 3 and 4 hours. Providing all goes well and he recovers from it normally (around 4 or so days), the long haul starts: getting him to eat normally. Once they determine that Max is eating (and pooping) normally we get to bring him home. However that could be weeks away. I’m hoping he has a typical Vanderzanden appetite and won’t have any problems eating, so he can come home soon.

    Thanks to everyone for your support, all your calls, emails, etc are all helping both Kelly and I cope with all this.

  • An update on Max

    It figures that within an hour of sending the writing last night that we’d get some bummer news, here’s an update. As I mentioned in the previous post, Mighty Max was having some minor breathing troubles since he was born, and the precautionary x-ray that was taken turned up what’s called a diaphragmatic hernia. Basically some of his intestines have formed/squeezed through the diaphragm (which separates your lungs and heart from your stomach and intestines) and are interfering with his left lung. This news surprised everyone since his vitals are so strong and he’s otherwise perfectly healthy.

    This resulted in us all being transferred to Legacy Emanuel last night around 8pm and Max is in the Neonatal Infant Care Unit (NICU). He’s doing fine (hooked up to tubes and wires), but he will likely go into surgery within a few days (there are some ultrasounds scheduled for later today). Afterward he’ll end up staying here at the hospital for 3 – 4 weeks before he can come home with us. This will depend on how well he does after surgery and how well he eats/process food afterward.

    This shit sucks (especially after the already unplanned c-section), however he’s in the right place (this hospital performs many of these surgeries, and newborns have even been flown down from Alaska for the surgery here), and while it means a delay before he can come home with us, his chances of a full recovery are good.

    We’ll be in the hospital through Thursday and then Kelly will be released. After that we’ll be here visiting every day until we can take the little man home with us.

    Thanks for all your thoughts and support.  I’ll keep you updated.

  • Baby Max is here!

    This morning, December 26th at 8:12am, Kelly and I welcomed our son

    Max!

    to the world. The stats for those who like that stuff: 21.5″ long, and weighed in at 7 lbs 10 oz. Both Kelly and the baby are doing well despite an unplanned (but entirely warranted) cesarean after 9 hours of rough labor. Kelly is resting comfortably, and the little man is chilling out (when he’s not being prodded and poked by the hospital staff over a concern of a chest infection or something).

    Full story:

    After getting up early Saturday for Christmas, going out to my folks, and then visiting some of Kelly’s family who are staying in Oregon City, we got home around 9pm last night. Around 10pm Kelly started feeling some early labor pains, by midnight had suddenly and intensely progressed, and by 2am we were in the hospital room and Kelly was in some seriously intense active labor.

    Within two hours she had progressed from 3cm to 7cm dilated, all w/o any pain meds (Kelly is made of steel and lava and diamonds). Then the progress stopped, and for another couple hours of incredibly rough and painful labor w/o any progression Kelly decided to get an epidural (which was a relief for me to see her agony vanish). The doctor did some checking and realized that the reason the progression halted was that the little man was coming out a bit cockeyed (chin wasn’t to chest and was going through slightly turned) and Kelly’s pelvis was likely not going to be large enough anyway. Combined with some distress on the child (reduced heartbeat) when Kelly was going through a contraction and it was decided the best (and probably only) choice for the boy was to go under the knife.

    I’d never been put in scrubs and walked into an operating room with my wife on the table before (and I really hope I don’t have to again) but the procedure was quick, and before we knew it there was a new little person in the world.

    For the next couple hours we waited in the recovery room, and then around 11:30 were moved back to our birthing suite. Max has had some blood drawn and an x-ray of his chest taken (not sure the results yet) but his breathing has improved so it seems he’ll be fine (fingers crossed). I guess some respiratory issues are common in cesarean births, but the staff here at Good Sam aren’t taking any chances (and I really appreciate it).

    After being up for 31 hours I finally dozed off for a nap on the sofa for a couple hours, and now Max is dozing happily on Kelly’s chest while we watch Trading Places on cable.

    Anyway, I’m sure there will be more posts, but I’m going to try and avoid smothering my blog with stuff about my boy (for the same reason I’ll not be posting his every move on Facebook). I hope to give him a sense of privacy as he grows older. He’ll probably be considered ‘off the grid’ by the time he’s a teen if his every moment isn’t published publicly on the interwebs. Good. 🙂

  • Winter solstice (hooray) and more important stuff

    Winter solstice is finally upon us (the end is nigh for these lame early nights/short days) and since it’s been such a long time between posts, here’s an update of what’s been going on the past few months.

    Kelly and I went to the coast again in late October with a group of friends (split the rent on an awesome house in Lincoln City near Roads End State Park that Aymie found, thanks again Aymie!) and had a blast, despite the stormy weather that weekend.

    Around the same time, I turned 36. Hooray or whatever. The big news from this was that I finally took the plunge (with a big, helpful push from Kelly and the rest of my family) and got an iPhone (4). No more cheap, crappy Virgin Mobile ‘pay as you go’ phone for me. Now I can retire my iPod Touch and post inane crap to Twitter anytime I want without having to hunt for a WiFi signal. Yay for everyone!

    In late November I had an awning installed on my back patio (pic here), which will be nice come spring when it’s rainy but warm-ish again. Kelly and I also painted the dining room and several other rooms in the house (keep reading).

    Work has been extra hectic the past few months, which is one reason I haven’t written in a while. I’m off work for a few weeks though, for reasons that will become apparent shortly.

    Last night was a lunar eclipse, which we couldn’t see due to the cloud cover and rain.

    Today we got hardwoods installed in the dining room, and they look awesome (pic here). If you’re in the market, Floor Factors does excellent work.

    Another big reason I’m finally writing after such a long gap, Kelly and I are expecting our first child (a boy!) to be born any moment. Due date is/was today! So far the little man has remained content in Kelly’s tummy and isn’t in a hurry to join us in the world. I can’t blame him to be honest. It’s probably very nice in the womb, all warm and squishy. However, Kelly (and I) are getting ready for him to come out and say hello.

    Over the past few months we’ve got his room cleared out, painted and decorated, and got the crib and co-sleeper set up. Also, due to the extreme generosity of friends and family, we’ve received a load of clothes, diapers, toys, a rocker chair for Kelly to nurse with, two strollers and an infant car seat which we barely we squeezed into our Scion xA. We’re ready to go!

    Any day now (hopefully before Christmas) he’ll decide he’s fully cooked. Otherwise we go in to start the induction process at midnight on December 26th.

    I’ll be writing again soon. Stay tuned!

  • Weekend at the coast

    This weekend Kelly took me to the coast for a surprise weekend getaway. She’d rented a house near Manzanita, and we spent a couple days driving around, visiting nearby spots including spending some of Saturday at Cannon Beach, hiking through Oswald West State Park, and on Sunday checking out Hug Point (my new favorite stretch of Oregon beach).

    Had a really tasty burger and a few pints of Guinness at the Sand Dune Pub on Friday night, and a delicious Shrimp Scampi dinner at the Terra Cotta Cafe on Saturday evening, right before racing down to see what little sunset there was left.

    It was really great to get away for a couple nights, and we got back with a Monday holiday day off to spare (so I could chill out around the house before returning to work). Thanks so much Kelly, it was fantastic!

    More photos here.

  • Camping trip to Wahtum Lake

    This past weekend I joined some friends on a camping trip (to celebrate my friend S’s upcoming 40th birthday) at Wahtum Lake in the Mount Hood National Forest, a drive of about two hours from Portland.

    We arrived around 2pm Friday, set up camp, and set about sipping on beers and roasting hot dogs over the fire. Saturday morning we took a two mile hike up Chinidere Mountain for an incredible 360 view of the mountain range and snow-covered peaks including Hood, Rainier, St. Helens, Adams and Jefferson.

    The hike about destroyed me however, and I hit the tent early Saturday night. Sunday morning we all got up early, made coffee and relaxed for a few hours before breaking down camp and headed home, stopping at Double Mountain brewpub in Hood River for some delicious pizza and beer. Great camping trip. However my calf muscles still hate me.

    More photos here.

  • Long week, short weekend

    After a long week getting up to speed on work for the next software release (including many, many meetings), the weather started to drastically improve here in Portland Friday a friend of mine came by for some BBQ and beers. Had a really fun night, followed by a slightly painful yesterday.

    I got up and watched several episodes of Top Gear before Kelly and I went to the Blue Olive for dinner, followed by checking out the Oregon Symphony perform Beethoven. The performance was fantastic, though the dinner had me feeling a bit too full and sleepy. After the show we dropped by the Back Stage Bar for our friend B’s birthday. Didn’t stay long though. Sleepy. Happy birthday B! We suck.

    After an early night and many hours of sleep I was able to get some serious yard work done today, mainly cleaning up the pile of debris that sat to one side/corner of the house. It was the spot where two years of Christmas trees/wreaths, many years of potting soil and planters, and general yard junk had been dumped. Hacking, sawing, digging, and barkdust re-spreading. It looks, well, not trashy now. After all that, I’ve been able to sit out on the front porch with a couple beers and, well, write this post. Hooray for spring!